3-1-09

On wed feb 25th Lily had a small seizure while we were in speech therapy. The therapist definitely thought something wasn't right, we both were thinking the same thing. It didn't last long but Lily seemed very tired after therapy (she had just woken up and had slept well the night before) and was out of sorts the rest of the day, wouldn't take a nap and was generally very crabby. It's hard because I really just wanted to bring her home for the day, but of course, I had to bring her to OT.

We started her MB12 shot on thurs. the 26th. Results: waking up for the day at 5am friday, 5:30am sat. and 5:10am sunday morning (today). Napping has been at a minimum, if at all. She wakes up in good spirits, seems more refreshed....it's just FAR too early! But she did sleep through about 9 hours each night. Maybe I'll try to put her down a little later so she sleeps till 6. She has been spinning like crazy, which she hasn't done for a long time. I think she had another seizure on friday and Anthony said she had one today (possibly 2). Due to the spinning we upped her folinic acid to two capsules starting yesterday (that is suppose to help I guess). We are going to stop the shots for the next week and keep on her increased dose of folinic acid and then maybe start again. (writing this info is really just record keeping for me).

I bought her some new books and VOILA, she actually will sit and listen to the story and seems to enjoy my reading to her. This is a complete first for the girl who is a speed page turner. I have actually had to tell her to turn the page some of the time! There really does seem to be something to this theory of new stuff = showing new skills. She doesn't sit and listen to stories with her thousands of other books (and hardly ever did), just the new ones.

We have been having Lily watch The Letter Factory(a DVD that teaches about the alphabet and the sounds that each letter makes) and she has been loving it and participating in a lot of the letter sounds. She's also really getting good at acting out parts of different shows or movies that she loves, especially Madagascar 2. It's really very comical.