5-1-09

We've been very busy, but we've been sleeping better! Unfortunately Lily has been having a lot of seizures lately. She had a rather big one last week on the 20th. The past few days she's had quite a few of her smaller ones. Yesterday was perticularly bad. She had so many I couldn't even keep track and she was totally miserable. She had them before, during and after her therapies. One of her speech therapists got to watch one. She felt compelled to time it, I think it lasted about 4 minutes or so (I didn't ask, I was too busy trying to comfort my girl). She always comes out of it really upset. I called today and made her an appointment for a neurologist. We get to once again have another hour long eeg before they'll see her. My anxiety is in overdrive in anticipation of the horror that will be that hour.

Lily's speech has improved a lot. She has a much easier time communicating her wants now. She is now doing this rambling thing where it's like she is talking her own language and every now and then you'll hear a word you recognize. It's very hysterical to me. When Anthony was letting her out of time out she went on and on like she was trying to explain to him why she had felt compelled to once AGAIN climb on the entertainment center. You'd hear jibberish, then K? then more jibberish, then K? Then yes, then more jibberish. She's very good at singing her songs now and fills them in better than ever (when she wants to, which is another story entirely)and even does the hand signs when appropriate. She knows most of her colors now and all of her body parts (we finished up with wrist, ankle, elbow, etc.) She was saying the word "cock' for awhile and would go around singing it. We couldn't figure it out until this morning when she saw a duck quacking on tv and started saying "cock, cock, cock" for "quack, quack, quack".

Lily continues to do well with her alphabet and is now learning her numbers (thanks to her Leap DVD's) Lily is swimming all by herself now (with her swimmies). She can swim to the middle of the pool and back now and really enjoys floating around. She can't say the word cold but does say 'brrr" when she needs a towel to warm up :)

Lily is officially two now. I say that because she refuses to listen or follow any kind of direction, even though she CLEARLY knows what you are asking her to do. She gets this look on her face that says "who are you kidding?" followed by a shit-eating grin (pardon the expression). It's very frustrating. Today at the pool, my sister sang the ABC's and ended it in french. Lily looked at her and said "no", then proceeded to sing the song the 'right" way. It was very funny. She's really turning into miss independent, I know better attitude. I guess that's what this age is about, I'm just hoping it goes away soon!